The time indicated in the Programme corresponds to the Spanish local time
Venue: La Paz University Hospital, Madrid – “Aula Ortiz Vázquez”
Thursday, June 13th, 2024
| 9:30-9:45 | Registration & Connection |
| 9:45-10:00 | Welcome presentation |
| General Session I: Psychosocial side-effects of transplantation | |
|
Chair: Ms. Elin Öfverberg – Sahlgrenska University Hospital (Gothemburg, Sweden) Dr. Eduardo Fernández – La Paz University Hospital (Madrid, Spain) |
|
| 10:00-10:15 |
The mental health of transplanted children and adolescents Dr. Marta Biernacka – The Children’s Memorial Health Institute (Warsaw, Poland) |
| 10:15-10:30 |
Felt needs of transplanted children – What do we need? What do we expect from Healthcare staff? Mr. Liam Hanfelt – Sahlgrenska University Hospital (Gothemburg, Sweden) |
| 10:30-10:45 | Felt needs of the parents of transplanted children – What do we need? What do we expect from Healthcare staff? |
| Ms. Pirjo Sorri – Virgen del Rocio University Hospital (Seville, Spain) | |
|
10:45-11:00
|
Impact of infant transplantation on siblings. Consequences of over-protection
Dr. Patricia Gallego – NUPA (Madrid, Spain) |
| 11:00-11:15 |
Impact of child’s transplant recipient disability on the family and the role of social support system Dr. Marianne Samyn – King’s College Hospital (London, England) |
| 11:15-11:45 | Discussion/Q&A Sesssion |
| 11:45-12:15 | Coffee Break |
| General Session II: Problems of growing transplant recipients | |
|
Chair: Ms. Paloma Martínez – La Paz University Hospital Ms. Ana Martínez – HEPA |
|
| 12:15-12:30 |
Adolescence and risk behaviours Dr. Concepción Bonet – La Paz University Hospital (Madrid, Spain) |
| 12:30-12:45 |
Therapeutic adherence and motivation Ms. Mathilde Leheup – Necker Hospital (Paris, France) |
| 12:45-13:00 |
How to improve medication adherence Dr. Kamila Zych – The Children’s Memorial Health Institute (Warsaw, Poland) |
| 13:00-13:15 |
Essential elements of transition programmes Dr. Anneloes Van Staa – Erasmus MC (Rotterdam University of Applied Sciences, the Netherlands) |
| 13:15-13:30 |
Sexual education in adolescent transplant recipients. Fertility and pregnancy after transplantation Prof. Monika Szpotańska – The Children’s Memorial Health Institute (Warsaw, Poland) |
| 13:30-14:00 | Discussion/Q&A Session |
| 14:00-15:15 | Lunch Break |
General Session III: Recurrence after transplantation and metabolic disease |
|
|
Chair: Dr. Alastair Baker – King’s College Hospital Dr. Carmen Capito – Necker Hospital (Paris, France) |
|
| 15:15-15:30 |
Recurrence of disease after kidney transplantation Dr. Licia Peruzzi – AOU City of Health and Science of Turin (Torino, Italy) |
| 15:30-15:45 |
Recurrence of disease after liver transplantation Dr. Norman Junge – Hannover Medical School (Hannover, Germany) |
|
15:45 16:00
16:00-16:15
16:15-16:30
16:30-16:45
16:45-17:15
17:15-17:30
|
Recurrence of disease after heart transplantation Dr. Manuela Camino – Gregorio Marañón University Hospital (Madrid, Spain) Recurrence of disease after lung transplantation Dr. Antonio Moreno – Vall d’Hebron University Hospital (Barcelona, Spain) Fatigue after paediatric stem cell transplantation for childhood cancer Dr. Raphaële van Litsenburg – Princess Maxima Center for Pediatric Oncology (Utretch, the Netherlands)
Living donor transplantation and metabolic diseases – risk of recurrence Dr. Dariusz Rokicki – The Children’s Memorial Health Institute (Warsaw, Poland)
Discussion / Q&A session
Conclusions Dr. Francisco Hernández – La Paz University Hospital (Madrid, Spain) |
| 17:30-17:45 |
Closure Dr. Paloma Jara – ERN TransplantChild Coordinator |
Download the Full Programme:
*Be aware that the programme may be subject to modification