The 12th Edition of the European Conference on Rare Diseases & Orphan products (ECRD) will take place on 15-16 May 2024 in Brussels and online.

ECRD is a must-attend for anyone looking to remain informed and actively engaged in pioneering solutions to improve the lives of the 30 million Europeans living with a rare disease.

The conference is estimated to gather 300 people in-person at The Square in Brussels and a further 700+ participants online: patient advocates, academics, health care professionals, healthcare industry, payers, regulators, Member State representatives and policy makers.

This conference will focus on identifying the most critical priorities and areas for improvement. By bringing together stakeholders from across Europe, the organisers aim to build a multi-stakeholder consensus on a comprehensive approach to rare disease policy that can provide a footprint for the next EU legislative cycle.

The conference will be organised by EURORDIS-Rare Diseases Europe, co-organised by Orphanet and supported by the EU Public Health Programme, AFM-Telethon, and funds raised through registration fees and corporations.