We are pleased to announce that in a couple of months the 16th Board of the Network will be held on 14th June in Madrid, Spain. 

We would like to emphasize the importance of these meetings in evaluating the Network’s operation and determining the next measures to be taken. As a result, be aware that is needed at least one representative for each centre is presented at the meeting in person.

On this occasion, the team from La Paz University Hospital together with the technical secretariat of the Network will organise the meeting. 

Aditionally, any member of the Network can send in their posters for display at the board, whether or not they are able to attend the event. Simply fill in the survey with details of the poster or send it to the following email address: [email protected]

Although the meeting is primarily intended for representatives of the Network and patient associations related to the Network, anyone interested is invited to attend.