Helping patients and families
PROMs and PREMs
Transplantchild truly believes in the need to care and treat patients in a special way, attending to their special needs as children. Listening to their opinions and experiences and making them part of the network.
ERN TransplantChild will use the patient’s opinions integrated with the clinical data in the PaEdiatric Transplant European Registry (PETER)
INVISIBLE
PROMs
Patient-reported outcome measures (PROMs) are defined as standardized, validated questionnaires (which are also called instruments) completed by patients to measure their perception of their functional well-being and health status.
PREMs
Patient-reported experience measurements (PREMs) are clinical tools used to collect information reported by patients related to their satisfaction about the health system.
PREMs Workshop with TransplantChild Patient Associations Representatives in Padova 2019.