2026

European Reference Networks – a flagship activity of the EU in the field of rare and complex diseases: from 2017 to 2025

Holm Graessner, Sophie Ripp, Alberto M. Pereira, Franz Schaefer, Irene Mathijssen, Jean-Yves Blay, Peter F. A. Mulders, Teresinha Evangelista, Marjolijn J. L. Ligtenberg, Arthur A. M. Wilde, Ruth Ladenstein, Ansgar W. Lohse, Marta Mosca, Joost Frans Swart, Francisco Hernández, Pierre Fenaux, Hélène Dollfus, Alain Verloes, Thomas Wagner, Christine Bodemer, Rene Wijnen, Maurizio Scarpa, Guillaume Jondeau, Birutė Tumienė, Sandra Gallina, Alexis Arzimanoglou and Luca Sangiorgi

2026 Doi: doi.org/10.1186/s13023-026-04341-2

Pet ownership and parent-reported mental health in pediatric transplantation. A cross-sectional study from the European reference network Transplantchild. The pink study

María Simón, Eduardo Fernández-Jiménez, Paula García-Sánchez, Jacek Rubik, David Canalejo-Gonzalez , Florence Lacaille, Chiara Bergamo, Vitor Hugo-Martin, Elisa Benetti, Alba Bermúdez,
Marta Gonzalez-Vicent, Teresa Costa, Paula Sevilla, Silvia Simó-Nebot, David Bueno, Esther Ramos-Boluda, Serena Vigezzi, Antonio Pérez-Martinez, Ana Méndez-Echevarría.

2026 Jan;81(1):82-90. Doi: doi.org/10.1016/j.onehlt.2026.101337

2025

Update on pediatric liver transplantation in Europe 2022: An ELITA-ESPGHAN report
Norman Junge 1 2 3, Vincent Karam 4, Hermien Hartog 5 6, Rene Adam 4 6 7, Valérie Cailliez 4 7, Giuseppe Indolfi 3 8, Marianne Samyn 3 9, Xavier Stephenne 2 3 10, Tudor Lucian Pop 3 11, Orit Waisbourd-Zinman 3 12 13, Benno Kohlmaier 3 14, Aglaia Zellos 3 15, Sara Mancell 3 16, Emmanuel Gonzales 3 17 18, Emanuele Nicastro 2 3 19, Jesus Quintero 3 20, Nicolas Richter 21, Nigel Heaton 22, Raymond Reding 23, Sophie Branchereau 24, Girish Gupte 25, Moritz Schmelzle 21, Lutz Fischer 26, Piotr Kalicinski 2 27, Michele Colledan 28, Manuel Lopez Santamaria 29, Ruben H de Kleine 5, Emer Fitzpatrick 2 3 30; European Liver and Intestine Transplant Association (ELITA) and European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN)

2025 Jul;81(1):82-90. Doi: doi.org/10.1002/jpn3.70065

2023

Vaccination practices in pediatric transplantation: A survey among member centers of the European reference network TransplantChild
Daniele Donà, Luz Yadira Bravo-Gallego, Esteban Frauca Remacha, Mara Cananzi, Andrea Gastaldi, Juan Torres Canizalez, Xavier Stephenne, Florence Lacaille, Caroline Lindemans, Elisabetta Calore, Nathalie Galea, Elisa Benetti, Edith Nachbaur, Ana Rita Sandes, Ana Teixeira, Sandra Ferreira, Maja Klaudel-Dreszler, Oanez Ackermann, Olivia Boyer, Laura Espinosa, Luis García Guereta, Marco Sciveres, Björn Fischler, Nicolaus Schwerk, Mette Neland, Emanuele Nicastro, Luca Dello Strologo, Jacek Toporski, Inga Vainumae, Jelena Rascon, Vaidotas Urbonas, Teresa del Rosal, Eduardo López-Granados, Giorgio Perilongo, Alastair Baker, Paloma Jara Vega, ERN TransplantChild Healthcare Working Group

Pediatr Transplant. 2023 Aug 5;e14589. Doi: doi.org/10.1111/petr.14589

2022

Prognosis of Children Undergoing Liver Transplantation: A 30-Year European Study
Ulrich Baumann, MD; Vincent Karam, PhD; René Adam, MD, PhD; Constantino Fondevila, MD, PhD; Anil Dhawan, MD; Etienne Sokal, MD, PhD; Emmanuel Jacquemin, MD, PhD; Deirdre A. Kelly, MD; Enke Grabhorn, MD; Joanna Pawlowska, MD, PhD; Lorenzo D’Antiga, MD; Paloma Jara Vega, MD; Dominique Debray, MD, PhD; Wojciech G. Polak, MD, PhD; Jean de Ville de Goyet, MD, PhD; Henkjan J. Verkade, MD, PhD; European Liver and Intestine Transplant Association (ELITA) and all ELTR contributing centers

2022 Oct 1;150(4):e2022057424. doi: https://doi.org/10.1542/peds.2022-057424

Pets for pediatric transplant recipients: To have or not to have
Lucía Platero, Paula Garcia-Sanchez, Talía Sainz, Cristina Calvo, Irene Iglesias, Fernando Esperon, Ricardo de la Fuente, Esteban Frauca, Antonio Perez-Martinez and Ana Mendez-Echevarria

Front. Vet. Sci. 2022 9:974665. doi: 10.3389/fvets.2022.974665

Cold Ischemia Time and Graft Fibrosis Are Associated with Autoantibodies after Pediatric Liver Transplantation: A Retrospective Cohort Study of the European Reference Network TransplantChild
Norman Junge, Angelo Di Giorgio, Muriel Girard, Zeynep Demir, Diana Kaminska, Maria Janowska, Vaidotas Urbonas, Dominykas Varnas, Giuseppe Maggiore, Tommaso Alterio, Christoph Leiskau, Florian W. R. Vondran, Nicolas Richter, Lorenzo D’Antiga, Rafael Mikolajczyk, Eva-Doreen Pfister, and Ulrich Baumann

Children 2022, 9, 275. https://doi.org/10.3390/children9020275

2021

Under-Vaccination in Pediatric Liver Transplant Candidates with Acute and Chronic Liver Disease—A Retrospective Observational Study of the European Reference Network TransplantChild 
Tobias Laue, Zeynep Demir, Dominique Debray, Mara Cananzi, Paola Gaio, Valeria Casotti, Lorenzo D’Antiga, Vaidotas Urbonas and Ulrich Baumann 

Children 2021, 8, 675. https://doi.org/10.3390/children8080675 

Current Practices on Diagnosis, Prevention and Treatment of Post-Transplant Lymphoproliferative Disorder in Pediatric Patients after Solid Organ Transplantation: Results of ERN TransplantChild Healthcare Working Group Survey 
Alastair Baker, Esteban Frauca Remacha, Juan Torres Canizales, Luz Yadira Bravo-Gallego, Emer Fitzpatrick, Angel Alonso Melgar, Gema Muñoz Bartolo, Luis Garcia Guereta, Esther Ramos Boluda, Yasmina Mozo, Dorota Broniszczak, Wioletta Jarmuzek, Piotr Kalicinski, Britta Maecker-Kolhoff, Julia Carlens, Ulrich Baumann, Charlotte Roy, Christophe Chardot, Elisa Benetti, Mara Cananzi, Elisabetta Calore, Luca Dello Strologo, Manila Candusso, Maria Francelina Lopes, Manuel João Brito, Cristina Gonçalves, Carmen Do Carmo, Xavier Stephenne, Lars Wennberg, Rosário Stone, Jelena Rascon, Caroline Lindemans, Dominik Turkiewicz, Eugenia Giraldi, Emanuele Nicastro, Lorenzo D’Antiga, Oanez Ackermann and Paloma Jara Vega, on behalf of ERN TransplantChild Healthcare Working Group

Children 2021, 8, 661. https://doi.org/10.3390/children8080661

Social Resources for Transplanted Children and Families in European Union Hospitals of ERN TransplantChild
María Jesús Pascau, Laura Pruneda, Ilaria de Barbieri, Matilde Correia, Belén López, Erika Guijarro, Gonzalo Sofío, Esteban Frauca Remacha, Paloma Jara Vega and on behalf of ERN TransplantChild Healthcare Working Group

Children 2021, 8, 723. https://doi.org/10.3390/children8090723

ABO Incompatible Liver Transplantation in Children: A 20 Year Experience from Centres in the TransplantChild European Reference Network
Małgorzata Markiewicz-Kijewska, Piotr Kalicinski, Juan Torres Canizales, Angelo Di Giorgio, Ulrich Baumann, Carl Jorns, Alastair Baker, Maria Francelina Lopes, Esteban Frauca Remacha, Eduardo Lopez-Granados, Paloma Jara Vega, Maria-Sole Basso, Grzegorz Kowalewski, Diana Kaminska, Sandra Ferreira, Daniela Liccardo, Andrea Pietrobattista, Marco Spada and on behalf of ERN TransplantChild Healthcare Working Group

Children 2021, 8,760. https://doi.org/10.3390/children8090760

2020

Cross-cutting view of current challenges in paediatric solid organ and haematopoietic stem cell transplantation in Europe: the European Reference Network TransplantChild
P. Jara, A. Baker, U. Baumann, A. M. Borobia, S. Branchereu, M. Candusso, A. J. Carcas, C. Chardot, J. Cobas, L. D’Antiga, C. Ferreras, E. Fitzpatrick, E. Frauca, F. Hernández-Oliveros, P. Kaliciński, C. Lindemans, M. F. Lopes, E. López-Granados, C. de Magnée, C. Mota, J. M. Muñoz, J. J. Ojeda, A. Pérez-Martínez, G. Perilongo, J. Rascon, M. Sciveres, R. Stone, V. Tarutis, J. Toporski, J. M. Torres, L. Wennberg and On behalf of ERN TransplantChild

Jara et al. Orphanet Journal of Rare Diseases (2020) 15:16 https://doi.org/10.1186/s13023-020-1293-0

Effectiveness of immunosuppression minimisation, conversion or withdrawal strategies in paediatric solid organ and haematopoietic stem cell transplantation: a protocol of a systematic review and meta-analysis
Carlos Martin Saborido, Alberto M Borobia, Javier Cobas, Lorenzo D’Antiga, Esteban Frauca, Francisco Hernández-Oliveros, Paloma Jara, Eduardo López-Granados, Jose María Muñoz, Emanuele Nicastro, Jose Jonay Ojeda, Antonio Pérez-Martínez, Juan Manuel Torres, Antonio Carcas

BMJ Open 2020;10:e037721. doi: http://dx.doi.org/10.1136/bmjopen-2020-037721

Pediatric transplantation in Europe during the COVID-19 pandemic: early impact on activity and healthcare
Daniele Doná, Juan Torres Canizales, Elisa Benetti, Mara Cananzi, Federica De Corti, Elisabetta Calore, Loreto Hierro, Esther Ramos Boluda, Marta Melgosa Hijosa, Luis Garcia Guereta, Antonio Pérez-Martínez, Maribel Barrios, Patricia Costa Reis, Ana Teixeira, Maria Francelina Lopes, Piotr Kaliciński, Sophie Branchereau, Olivia Boyer, Dominque Debray, Marco Sciveres, Lars Wennberg, Björn Fischler, Peter Barany, Alastair Baker, Ulrich Baumann, Nicolaus Schwerk, Emanuele Nicastro, Manila Candusso, Jacek Toporski, Etienne Sokal, Xavier Stephenne, Caroline Lindemans, Marius Miglinas, Jelena Rascon, Paloma Jara, on behalf of ERN TransplantChild.

doi: https://doi.org/10.1111/ctr.14063