2026

Biodegradable stents for biliary strictures after pediatric liver transplantation: a multicenter retrospective study

Paolo Marra 1 2, Daniel Barnes-Navarro 3, Lucía Fernández-Rodríguez 4, Giulio Barbiero 5, Simon Prosser McGuirk 6, Carla Gonzalez-Junyent 3, Iratxe Díez-Miranda 3, Jesus Quintero-Bernabeu 7, Teresa Hernández-Cabrero 4, Joan Novo-Torres 4, Maria Dolores Ponce-Dorrego 4, Jimena Gonzalez-Nieto 4, Michele Battistel 5, Maria Carla Minà 8, Stefano Groff 5, Conor J A Aleman 6, Rebecca Lucy Warren 6, Khalid Sharif 9, Chiara Ceriani 10 11, Riccardo Muglia 10 11, Lorenzo D’Antiga 10 12, Sandro Sironi 10 11, Mercedes Perez-Lafuente 3

2026 Mar;36(3):2283-2294. doi: 10.1007/s00330-025-11930-5

European Reference Networks – a flagship activity of the EU in the field of rare and complex diseases: from 2017 to 2025

Holm Graessner, Sophie Ripp, Alberto M. Pereira, Franz Schaefer, Irene Mathijssen, Jean-Yves Blay, Peter F. A. Mulders, Teresinha Evangelista, Marjolijn J. L. Ligtenberg, Arthur A. M. Wilde, Ruth Ladenstein, Ansgar W. Lohse, Marta Mosca, Joost Frans Swart, Francisco Hernández, Pierre Fenaux, Hélène Dollfus, Alain Verloes, Thomas Wagner, Christine Bodemer, Rene Wijnen, Maurizio Scarpa, Guillaume Jondeau, Birutė Tumienė, Sandra Gallina, Alexis Arzimanoglou and Luca Sangiorgi

2026 Doi: doi.org/10.1186/s13023-026-04341-2

Pet ownership and parent-reported mental health in pediatric transplantation. A cross-sectional study from the European reference network Transplantchild. The pink study

María Simón, Eduardo Fernández-Jiménez, Paula García-Sánchez, Jacek Rubik, David Canalejo-Gonzalez , Florence Lacaille, Chiara Bergamo, Vitor Hugo-Martin, Elisa Benetti, Alba Bermúdez,
Marta Gonzalez-Vicent, Teresa Costa, Paula Sevilla, Silvia Simó-Nebot, David Bueno, Esther Ramos-Boluda, Serena Vigezzi, Antonio Pérez-Martinez, Ana Méndez-Echevarría.

2026 Jan;81(1):82-90. Doi: doi.org/10.1016/j.onehlt.2026.101337

2025

Phenotypic Divergence of JAG1- and NOTCH2-Associated Alagille Syndrome & Disease-Specific NOTCH2 Variant Classification Guidelines
Shannon M. Vandriel, Li-Ting Li, Huiyu She, Jian-She Wang, Kathleen M. Loomes, David A. Piccoli, Irena Jankowska, Piotr Czubkowski, Dorota Gliwicz-Miedzińska, Lorenzo D’Antiga, Emanuele Nicastro, Florence Lacaille, Dominique Debray, Étienne M. Sokal, Tanguy Demaret, Rima L. Fawaz, Silvia Nastasio, Kyung Mo Kim, Seak Hee Oh, Björn Fischler, Henrik Arnell, Catherine Larson-Nath, Winita Hardikar, Sahana Shankar, Shikha S. Sundaram, Alexander Chaidez, Pinar Bulut, Pier Luigi Calvo, Mureo Kasahara, Niviann Blondet, Eberhard Lurz, Anna-Maria Kavallar, Emmanuel M. Gonzales, Emmanuel Jacquemin, Jérôme Bouligand, Noelle H. Ebel, Jeffrey A. Feinstein, Susan M. Siew, Michael O. Stormon, Saul J. Karpen, Rene Romero, M. Kyle Jensen, Catalina Jaramillo, James E. Squires, Sarah M. Bedoyan, Deirdre A. Kelly, Jane Hartley, Henkjan J. Verkade, Way Seah Lee, Chatmanee Lertudomphonwanit, Ryan T. Fischer, Henry C. Lin, Nathalie Rock, Yael Mozer-Glassberg, Amin J. Roberts, Helen M. Evans, Wikrom Karnsakul, Gabriella Nebbia, Victorien M. Wolters, Pamela L. Valentino, Jesus Quintero Bernabeu, Amal A. Aqul, Cigdem Arikan, María Legarda Tamara, Cristina Molera Busoms, Thomas Damgaard Sandahl, Giuseppe Indolfi, Andréanne N. Zizzo, Aglaia Zellos, Ruben E. Quiros-Tejeira, Ermelinda Santos-Silva, Kathleen B. Schwarz, Jernej Brecelj, Maria Camila Sanchez, Maria Lorena Cavalieri, Christos Tzivinikos, Sabina Wiecek, John Eshun, Nanda Kerkar, Quais Mujawar, Zerrin Önal, Cristina Gonçalves, Jennifer Garcia, Seema Alam, Carolina Jimenez-Rivera, Luis Bujanda, Richard J. Thompson, Bettina E. Hansen, Nancy B. Spinner, Melissa A. Gilbert, Binita M. Kamath, The Global ALagille Alliance (GALA) Study Group

2025 Sep;45(9):e70251. doi: 10.1111/liv.70251

Pediatric Liver and Kidney Transplant Recipients Demonstrate Greater Serological Response to SARS-CoV-2 Vaccination Than Adults
Tobias Laue 1 2, Maria Pilar Ballester 3, Lily Meoli 4, Carl Grabitz 1, Eva Uson 5, Lorenzo D Antiga 6, Valerie McLin 7, Montserrat Pujadas 5, Ângela Carvalho-Gomes 8 9, Ivan Sahuco 8, Ariadna Bono 8, Federico D’Amico 10 11, Raffaela Viganò 12, Elena Diago 13 14 15, Beatriz Tormo Lanseros 13 15, Elvira Inglese 12, Dani Martinez Vazquez 16, Annelotte Broekhoven 17, Marjolein Kikkert 18, Shessy P Torres Morales 18, Sebenzile K Myeni 18, Mar Riveiro-Barciela 15 16 19, Adriana Palom 15 16, Nicola Zeni 20, Alessandra Brocca 20, Annarosa Cussigh 21, Sara Cmet 21, Maria Desamparados Escudero-García 3 22, Matteo Stocco 3, Leonardo Antonio Natola 23, Donatella Ieluzzi 23, Veronica Paon 23, Angelo Sangiovanni 24, Elisa Farina 24, Clara Dibenedetto 24, Yolanda Sánchez-Torrijos 25, Ana Lucena-Varela 25, Eva Román 15 26 27, Elisabet Sánchez 15 26, Rubén Sánchez-Aldehuelo 28, Julia López-Cardona 28, Dhaarica Jeyanesan 4, Alejandro Esquivel Morocho 4, Itzel Canas-Perez 29, Christine Eastgate 29, Simone Di Cola 30, Lucia Lapenna 30, Giacomo Zaccherini 31 32, Deborah Bongiovanni 31, Antonio Riva 33, Rajni Sharma 33, Hio Lam Phoebe Tsou 33, Nicola Harris 33, Paola Zanaga 34 35, Katia Sayaf 34 35, Sabir Hossain 36, Javier Crespo 37 38, Mercedes Robles-Díaz 15 39, Antonio Madejón 40, Helena Degroote 41 42, Marko Korenjak 43, Xavier Verhelst 19 41 44, Javier García-Samaniego 40, Raúl J Andrade 15 39, Paula Iruzubieta 37 38, Gavin Wright 36, Paolo Caraceni 31 32, Manuela Merli 30, Vishal C Patel 4 33, Amir Gander 29, Agustín Albillos 28, Germán Soriano 15 26, Maria Francesca Donato 24, David Sacerdoti 23, Pierluigi Toniutto 21, Maria Buti 14 16, Christophe Duvoux 45, Paolo Antonio Grossi 46, Thomas Berg 47, Wojciech G Polak 48, Massimo Puoti 49, Anna Bosch-Comas 5, Luca S Belli 12, Patrizia Burra 34 35, Francesco Paolo Russo 34 35, Minneke Coenraad 17, José Luis Calleja 13 15, Giovanni Perricone 12, Shilpa Chokshi 33 50, Marina Berenguer 8 9, Joan Clària 5 51, Richard Moreau 5 52 53, Javier Fernández 5 54, Vicente Arroyo 5, Paolo Angeli 19, Cristina Sánchez-Garrido 5, Javier Ampuero 25, Salvatore Piano 19, Emanuele Nicastro 55, Nathalie Rock 7, Debbie Shawcross 56, Lindsey Edwards 57, Frauke Mutschler 1, Anette Melk 1, Gautam Mehta 29 58, Ulrich Baumann 1 59, Rajiv Jalan 5 29 58

2025 Apr 29;11(5):e1787. Doi: doi.org/10.1097/txd.0000000000001787

Key lessons from the first international treatment eligibility committee: the case of metachromatic leukodystrophy
Daphne H Schoenmakers 1, Marije A B C Asbreuk 1, Tamara Martin 2, Mareen Datema 3, Shanice Beerepoot 4, Michal Inbar-Feigenberg 5, Samuel Groeschel 6, Christiane Kehrer 6, Andreas Øberg 7, Caroline Sevin 8, Francesca Fumagalli 9, Caroline G Bergner 10, Päivi Vieira 11, Annette Bley 12, Johanna Uusimaa 11, Morten Andreas Horn 13, Klára Brožová 14, Eva Stögmann 15, Herbert Pichler 16, Roswitha Lüftinger 16, Erik A Eklund 17, Fanny Mochel 18, Laura A Adang 19, Lucia Laugwitz 20, Jaap Jan Boelens 21, Valeria Calbi 22, Alejandra Darling 23, Ángeles García-Cazorla 23, Sabine W Grønborg 24, Caroline A Lindemans 25, Peter M van Hasselt 26, Carla E M Hollak 27, Tom J de Koning 28, Dipak Ram 29, Hanka Dekker 30, Ludger Schöls 31, Ayelet Zerem 32, Holm Graessner 2, Nicole I Wolf 33

2025 Jul:57:72-81. Doi: doi.org/10.1016/j.ejpn.2025.05.012

Update on pediatric liver transplantation in Europe 2022: An ELITA-ESPGHAN report
Norman Junge 1 2 3, Vincent Karam 4, Hermien Hartog 5 6, Rene Adam 4 6 7, Valérie Cailliez 4 7, Giuseppe Indolfi 3 8, Marianne Samyn 3 9, Xavier Stephenne 2 3 10, Tudor Lucian Pop 3 11, Orit Waisbourd-Zinman 3 12 13, Benno Kohlmaier 3 14, Aglaia Zellos 3 15, Sara Mancell 3 16, Emmanuel Gonzales 3 17 18, Emanuele Nicastro 2 3 19, Jesus Quintero 3 20, Nicolas Richter 21, Nigel Heaton 22, Raymond Reding 23, Sophie Branchereau 24, Girish Gupte 25, Moritz Schmelzle 21, Lutz Fischer 26, Piotr Kalicinski 2 27, Michele Colledan 28, Manuel Lopez Santamaria 29, Ruben H de Kleine 5, Emer Fitzpatrick 2 3 30; European Liver and Intestine Transplant Association (ELITA) and European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN)

2025 Jul;81(1):82-90. Doi: doi.org/10.1002/jpn3.70065

2023

Vaccination practices in pediatric transplantation: A survey among member centers of the European reference network TransplantChild
Daniele Donà, Luz Yadira Bravo-Gallego, Esteban Frauca Remacha, Mara Cananzi, Andrea Gastaldi, Juan Torres Canizalez, Xavier Stephenne, Florence Lacaille, Caroline Lindemans, Elisabetta Calore, Nathalie Galea, Elisa Benetti, Edith Nachbaur, Ana Rita Sandes, Ana Teixeira, Sandra Ferreira, Maja Klaudel-Dreszler, Oanez Ackermann, Olivia Boyer, Laura Espinosa, Luis García Guereta, Marco Sciveres, Björn Fischler, Nicolaus Schwerk, Mette Neland, Emanuele Nicastro, Luca Dello Strologo, Jacek Toporski, Inga Vainumae, Jelena Rascon, Vaidotas Urbonas, Teresa del Rosal, Eduardo López-Granados, Giorgio Perilongo, Alastair Baker, Paloma Jara Vega, ERN TransplantChild Healthcare Working Group

Pediatr Transplant. 2023 Aug 5;e14589. Doi: doi.org/10.1111/petr.14589

2022

Prognosis of Children Undergoing Liver Transplantation: A 30-Year European Study
Ulrich Baumann, MD; Vincent Karam, PhD; René Adam, MD, PhD; Constantino Fondevila, MD, PhD; Anil Dhawan, MD; Etienne Sokal, MD, PhD; Emmanuel Jacquemin, MD, PhD; Deirdre A. Kelly, MD; Enke Grabhorn, MD; Joanna Pawlowska, MD, PhD; Lorenzo D’Antiga, MD; Paloma Jara Vega, MD; Dominique Debray, MD, PhD; Wojciech G. Polak, MD, PhD; Jean de Ville de Goyet, MD, PhD; Henkjan J. Verkade, MD, PhD; European Liver and Intestine Transplant Association (ELITA) and all ELTR contributing centers

2022 Oct 1;150(4):e2022057424. doi: https://doi.org/10.1542/peds.2022-057424

Pets for pediatric transplant recipients: To have or not to have
Lucía Platero, Paula Garcia-Sanchez, Talía Sainz, Cristina Calvo, Irene Iglesias, Fernando Esperon, Ricardo de la Fuente, Esteban Frauca, Antonio Perez-Martinez and Ana Mendez-Echevarria

Front. Vet. Sci. 2022 9:974665. doi: 10.3389/fvets.2022.974665

Cold Ischemia Time and Graft Fibrosis Are Associated with Autoantibodies after Pediatric Liver Transplantation: A Retrospective Cohort Study of the European Reference Network TransplantChild
Norman Junge, Angelo Di Giorgio, Muriel Girard, Zeynep Demir, Diana Kaminska, Maria Janowska, Vaidotas Urbonas, Dominykas Varnas, Giuseppe Maggiore, Tommaso Alterio, Christoph Leiskau, Florian W. R. Vondran, Nicolas Richter, Lorenzo D’Antiga, Rafael Mikolajczyk, Eva-Doreen Pfister, and Ulrich Baumann

Children 2022, 9, 275. https://doi.org/10.3390/children9020275

2021

Under-Vaccination in Pediatric Liver Transplant Candidates with Acute and Chronic Liver Disease—A Retrospective Observational Study of the European Reference Network TransplantChild 
Tobias Laue, Zeynep Demir, Dominique Debray, Mara Cananzi, Paola Gaio, Valeria Casotti, Lorenzo D’Antiga, Vaidotas Urbonas and Ulrich Baumann 

Children 2021, 8, 675. https://doi.org/10.3390/children8080675 

Current Practices on Diagnosis, Prevention and Treatment of Post-Transplant Lymphoproliferative Disorder in Pediatric Patients after Solid Organ Transplantation: Results of ERN TransplantChild Healthcare Working Group Survey 
Alastair Baker, Esteban Frauca Remacha, Juan Torres Canizales, Luz Yadira Bravo-Gallego, Emer Fitzpatrick, Angel Alonso Melgar, Gema Muñoz Bartolo, Luis Garcia Guereta, Esther Ramos Boluda, Yasmina Mozo, Dorota Broniszczak, Wioletta Jarmuzek, Piotr Kalicinski, Britta Maecker-Kolhoff, Julia Carlens, Ulrich Baumann, Charlotte Roy, Christophe Chardot, Elisa Benetti, Mara Cananzi, Elisabetta Calore, Luca Dello Strologo, Manila Candusso, Maria Francelina Lopes, Manuel João Brito, Cristina Gonçalves, Carmen Do Carmo, Xavier Stephenne, Lars Wennberg, Rosário Stone, Jelena Rascon, Caroline Lindemans, Dominik Turkiewicz, Eugenia Giraldi, Emanuele Nicastro, Lorenzo D’Antiga, Oanez Ackermann and Paloma Jara Vega, on behalf of ERN TransplantChild Healthcare Working Group

Children 2021, 8, 661. https://doi.org/10.3390/children8080661

Social Resources for Transplanted Children and Families in European Union Hospitals of ERN TransplantChild
María Jesús Pascau, Laura Pruneda, Ilaria de Barbieri, Matilde Correia, Belén López, Erika Guijarro, Gonzalo Sofío, Esteban Frauca Remacha, Paloma Jara Vega and on behalf of ERN TransplantChild Healthcare Working Group

Children 2021, 8, 723. https://doi.org/10.3390/children8090723

ABO Incompatible Liver Transplantation in Children: A 20 Year Experience from Centres in the TransplantChild European Reference Network
Małgorzata Markiewicz-Kijewska, Piotr Kalicinski, Juan Torres Canizales, Angelo Di Giorgio, Ulrich Baumann, Carl Jorns, Alastair Baker, Maria Francelina Lopes, Esteban Frauca Remacha, Eduardo Lopez-Granados, Paloma Jara Vega, Maria-Sole Basso, Grzegorz Kowalewski, Diana Kaminska, Sandra Ferreira, Daniela Liccardo, Andrea Pietrobattista, Marco Spada and on behalf of ERN TransplantChild Healthcare Working Group

Children 2021, 8,760. https://doi.org/10.3390/children8090760

2020

Cross-cutting view of current challenges in paediatric solid organ and haematopoietic stem cell transplantation in Europe: the European Reference Network TransplantChild
P. Jara, A. Baker, U. Baumann, A. M. Borobia, S. Branchereu, M. Candusso, A. J. Carcas, C. Chardot, J. Cobas, L. D’Antiga, C. Ferreras, E. Fitzpatrick, E. Frauca, F. Hernández-Oliveros, P. Kaliciński, C. Lindemans, M. F. Lopes, E. López-Granados, C. de Magnée, C. Mota, J. M. Muñoz, J. J. Ojeda, A. Pérez-Martínez, G. Perilongo, J. Rascon, M. Sciveres, R. Stone, V. Tarutis, J. Toporski, J. M. Torres, L. Wennberg and On behalf of ERN TransplantChild

Jara et al. Orphanet Journal of Rare Diseases (2020) 15:16 https://doi.org/10.1186/s13023-020-1293-0

Effectiveness of immunosuppression minimisation, conversion or withdrawal strategies in paediatric solid organ and haematopoietic stem cell transplantation: a protocol of a systematic review and meta-analysis
Carlos Martin Saborido, Alberto M Borobia, Javier Cobas, Lorenzo D’Antiga, Esteban Frauca, Francisco Hernández-Oliveros, Paloma Jara, Eduardo López-Granados, Jose María Muñoz, Emanuele Nicastro, Jose Jonay Ojeda, Antonio Pérez-Martínez, Juan Manuel Torres, Antonio Carcas

BMJ Open 2020;10:e037721. doi: http://dx.doi.org/10.1136/bmjopen-2020-037721

Pediatric transplantation in Europe during the COVID-19 pandemic: early impact on activity and healthcare
Daniele Doná, Juan Torres Canizales, Elisa Benetti, Mara Cananzi, Federica De Corti, Elisabetta Calore, Loreto Hierro, Esther Ramos Boluda, Marta Melgosa Hijosa, Luis Garcia Guereta, Antonio Pérez-Martínez, Maribel Barrios, Patricia Costa Reis, Ana Teixeira, Maria Francelina Lopes, Piotr Kaliciński, Sophie Branchereau, Olivia Boyer, Dominque Debray, Marco Sciveres, Lars Wennberg, Björn Fischler, Peter Barany, Alastair Baker, Ulrich Baumann, Nicolaus Schwerk, Emanuele Nicastro, Manila Candusso, Jacek Toporski, Etienne Sokal, Xavier Stephenne, Caroline Lindemans, Marius Miglinas, Jelena Rascon, Paloma Jara, on behalf of ERN TransplantChild.

doi: https://doi.org/10.1111/ctr.14063